Shop for a good cause


Contributors
and Sponsors
|
about us
The
Fibromyalgia Treatment Center, Inc. is a 501(c)3 nonprofit corporation
with a threefold mission:
- Raise money for research into the diagnosis and treatment of fibromyalgia;
- Educate the medical community and the general public about the nature,
diagnosis, and treatment of fibromyalgia and its related conditions;
- Aid fibromyalgics in their search for health.
Four years ago a small group of fibromyalgics,
all members of an online support group, were getting well following the
Guaifenesin Protocol, the treatment regimen
developed by R. Paul St. Amand, M.D.
and his assistant Claudia Marek.
Although their success was obvious, the medical community required more
rigorous evidence. There was an obvious and urgent need for credible research
and education.
Fibromyalgia, often misdiagnosed, is not
a new or rare disease. It is a debilitating and complex set of related
symptoms and has been known by various names for over a century. Statistically,
about five percent of the US population is affected. There are no specific
diagnostic tests that "prove" its existence, although the condition
has been recognized by the World Health Organization as a verifiable disease
for many years. To achieve a diagnosis medical practitioners must rely
on a process of elimination via established testing techniques. This degree
of testing can eliminate a slew of conditions with similar symptoms, but
in our era of constricted medical care that degree of analysis is an unaffordable
luxury. Unfortunately patients are often "dismissed" as merely
depressed folks with psychosomatic complaints. Medical history is filled
tales of real, treatable diseases that were originally dismissed as histrionic
imaginings.
Today's diagnostic method consists of anecdotal
reports offered to wise, informed, and compassionate physicians. The disease
exists. There is no cure. However, like diabetes and other chronic illnesses
it can be treated and managed. R. Paul St. Amand, M.D., Assistant Clinical
Professor of Medicine, Endocrinology, UCLA, along with many other physicians
across the US have successfully treated thousands of fibromyalgia patients
using guaifenesin, an old and inexpensive drug with new uses. Although
reams of anecdotal evidence exist on the success of guaifenesin in treating
fibromyalgia, tightly controlled and credible research is required. This
research could easily be done by a drug company, but since guaifenesin
is no longer under patent and no company stands to profit from such a
study, it has been difficult to interest any corporation in undertaking
the project. Hence, this organization was born. Our most important contributors
to this multi-year project are fibromyalgia
patients, their friends and families.
This website is constantly evolving. Please
let us know how we can improve it. We sincerely thank you for your donations,
your help, and your concern.
|
|